So it's been a while...7 months actually. Though there have been short updates and progress reports on facebook, I haven't written on this blog since Brynne's 1st birthday. I didn't really realize why I didn't write until June 10, when she turned 18 months. It's because I couldn't. It's not that my fingers couldn't type but that my brain and my heart couldn't get on the same page.
So why am I writing now? Because today is the start of what I pray is a new beginning. We are heading to California today to see Dr. Martin (pronounced Marteen) at Mattel Children's Hospital at UCLA. Our appointment is at 8:00 tomorrow morning. My expectations of this trip are mixed and I'm truly not expecting a miracle cure but a new direction to research or perhaps a diagnosis would be nice.
We have come to realize whatever this is will be with Brynne for a while. We are ok with that. We praise God everyday that she is a happy, smiling, wonderfully spirited sweetie and that she doesn't know anything is even wrong. As she grows, we know that she will come to understand more but we also know God's plan will be revealed.
We have also been greatly blessed by the generosity of our community from "old" to young. I'm not calling the Post Lion's Club old :) but they are older compared to the Cardinal's Little League team that held a car wash and raised money for Brynne. We also received passes from Southwest Airlines to make the trip to LA. I am truly overwhelmed with the outpouring of love and support from our community, surrounding areas, and of course our friends and family. Some day we will be able to pass on the blessings to others.
We are also so excited to be able to take Koda on this trip with us. He has been a trooper for sure and is so excited to take this trip. The other day he asked me to help him make a list. "A list?" I asked. "Yes, of all the places I want to go." he said. So we made the list...it has five items.
1. Sea World
2. Zoo
3. Beach
4. Barn (a real one, you know that's red and has animals in it, not a gray one with tractors in it :) )
5. On an airplane
And the list is hanging on our bulletin board. Two weeks ago we went to Abilene for Megan & Travis' wedding and marked one thing off the list...the Zoo. We had a blast! This week we will mark two more things off the list...the beach and the airplane. Surely there's a red barn around here somewhere! and well maybe Sea World someday!! It blessed my heart that he already has goals and such an imagination.
Well, its time to pack the car and get on the road. I ask that you pray with us for God's plan to be revealed and our attitudes to be loving, giving and at all times to exude the awesomeness of our Heavenly Father.
I end with our family moto:
Let all that I am praise the Lord; may I never forget the good things he does for me. He forgives all my sins and heals all my diseases. Psalm 103:2-3
